Standardizing Hospice Data Collection Practices |
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Hospice Data & Information Standards Task Group
Previously known as the Information and Technology Task Group
Making community hospice palliative care visible |
Shared information. Stronger evidence. Quality service for the people and communities hospice societies serve.
BCHPCA is developing a practical framework to help hospice societies across British Columbia and the Yukon describe their services consistently and demonstrate their collective reach, capacity and contribution. Framework Coming soon Connect with us |
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Local care deserves a clearer shared picture
Hospice societies provide a wide range of support, from palliative care and caregiver services to grief and bereavement support, volunteer visiting and community education. When organizations describe and count this work differently, it becomes harder to understand what is available, where gaps exist and what communities need.
A common language and a manageable set of measures can help bring that picture into focus.
Plan with greater clarityUnderstand service availability, demand and organizational capacity to inform local and regional planning. | Strengthen the case for supportBuild credible, comparable evidence for funding conversations, advocacy and sustainable community services. | Make access gaps visibleIdentify differences in geographic reach and help guide attention to rural, remote and underserved communities. |
What we are building
Six areas. One shared framework.
01 Organizational capacity What hospice societies need to sustain their services: people, infrastructure and organizational resources. | 02 Service availability Which palliative care, grief, caregiver and community supports are available, and where. | 03 Service volume & reach How much support is delivered and how many people and communities services reach. |
04 Workforce & volunteers The staff and volunteer capacity that makes community hospice care possible. | 05 Geographic access How location shapes access, particularly in rural, remote and underserved communities. | 06 Quality & experience A foundation for understanding how people experience support and improving services over time. |
Strategic value
| A clearer picture of community hospice can support better decisions about where care is needed, and what it takes to sustain it.
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Built with the sector
Practical for hospices of every size
Shared definitions and sector surveys have laid the groundwork. The next stages focus on agreeing on useful measures, testing them in practice and refining the framework before wider implementation.
Each proposed measure will be considered for its relevance, clarity, feasibility, equity and value relative to the effort required, especially for small, rural, remote and volunteer-led societies.
01 · Listen & learn Learn from sector surveys and existing practices. | 02 · Build Develop shared terms and a draft framework. | 03 · Reach consensus Review and prioritize meaningful measures. | 04 · Test & refine Check clarity and reporting effort in practice. |
05 · Implement Support participation and learn together. Development pathway; consultation and testing will inform the final framework and rollout. |
First phase Establish a baselineStart with core information about services, capacity, volunteers and geographic reach. | Build over time Understand demandDevelop a clearer picture of service use, referral patterns and changing community needs. | Longer-term direction Learn from experienceGrow the approach to quality, feedback and outcomes as the framework matures. |
Project learning
From early findings to shared understanding
Earlier surveys explored the services and supports offered by participating hospice societies. These findings provide a starting point for developing shared definitions and a more consistent approach to reporting.
Explore early survey findings
View the demographic and grief and bereavement results previously shared by BCHPCA. Findings describe participating organizations at the time of each survey.
Survey findings →
Get involved
Help build a clearer picture of community hospice
Hospice societies and partners bring essential knowledge to this work. To learn more about the framework or opportunities to contribute, contact BCHPCA.
Contact BCHPCAWith thanks to our contributorsBCHPCA thanks the task group members, participating hospice societies and partners who have shared their time, expertise and experience. Their contributions are helping shape a framework grounded in the realities of community hospice care. | Resources for membersBCHPCA members can access task group materials and working resources through the members’ area. For members: Login is be required |
About the associationBCHPCA represents its members: individuals and organizations that deliver hospice/palliative care and bereavement services and programs across British Columbia and the Yukon Territory. | Contact usEmail: office@bchpca.org Unit 1100- 1200 West 73rd Ave, | Stay InTouchKeep up to date on upcoming events and recent job postings |
The BC Hospice Palliative Care Association (BCHPCA) recognizes the traditional land of the First Nations, Métis and Inuit peoples who have walked before us and minded the lands we now call home for time immemorial. Hospice Societies have been able to support, aid and care for many people on these same lands. The BCHPCA Offices are located on the ancestral, traditional, and unceded lands of the Coast Salish Peoples, including the territories of the Musqueam, Squamish, and TsleilWaututh Nations.
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